Day 46

This morning Levi's overnight nurse called to let us know that he had a bad night. Things could have been worse, but he dropped his sats pretty low and his Co2 was not great on some of his gases. We got to the hospital and talked with her about everything. They gave him some medicine to keep his blood pressure under control and that seemed to help him. They are also trying to keep him pretty sedated so that he stays calm. His sats are better when he is more relaxed. They started dialysis back at about 6:30 PM. He had been getting out plenty of urine, but Dr. A thinks it would be best just to stay on top of the fluid and we agree. He has done so much better when he was more dry and so even though he was getting a good bit out, he didn't pee for almost a whole day before he started back and gained some fluid that night. We haven't talked about how long we will do dialysis this time, so I will update when we come off probably. Later in the day, Levi had three good gases in a row so they went down a little on the rate on the vent. His next gas after the change was still good so I am hoping that will stay good and we can get down to the settings we need them on to be ready for surgery. So they changed the way the breathing tube is taped to Levi today. They took the tape off of him and replaced it with a plastic thingy(I forgot what it was called) that will give his cheeks and lip some time to air out because he has developed a yeasty rash from being covered for the past 6 weeks. He looks so pitiful, poor baby; his cheeks are just so red.