Friday, September 30, 2011

5 Weeks Old

Today has been a bad day. We were back up to around .570 on the flow. Levi's pre sat kept dropping. That number is usually pretty good. He is not using the oxygen they are giving him so we need his lungs to open up and start working. The little air he had on his X-ray was gone this morning. The blood in his lungs did stop and we were just getting old blood out instead of red so hopefully that will stay away so we can do more chest PT. I don't know why his lungs are so sensitive; maybe all of the blood thinner he is on. He is very swollen and not peeing as much so we are hoping he will get rid of some more of that fluid in the next few hours. He was doing much better and had more breath sounds and air a few days ago when he was more dry. The steroids do not seem to have helped; they have his blood pressure elevated and have him aggravated. Maybe when he gets those out of his system he will calm back down and make some progress. I hate that we lost everything we accomplished.

Levi looked so sweet today and so sad. He just looked like he didn't feel good. That breaks my heart, I just want him better so I can hold him and love on him all day. I want him to feel my love. I hope he doesn't feel so sad laying there all day, just wishing someone would pick him up and snuggle him. We started playing classical music for him about a week ago and it puts him to sleep. Sweet boy. Today I was playing him some of my favorite songs. One I think he liked was Kari Jobe, Healer. It is hard not to get frustrated by days like today but I am not giving up. I will keep praying for healing until he is healthy in my arms.


  1. Amen sister!! You will hold him and He will breathe on his own!!! I just won't stop believing...Lord, let our faith make Levi whole in Jesus' name!

  2. Yes, Lord!... Arise [from the depression and prostration in which circumstances have kept you--rise to a new life]! Shine(be radiant with the glory of the Lord), for your light has come, and the glory of the Lord has risen upon you!

    For behold, darkness shall cover the earth, and dense darkness [all] people's, but the Lord shall rise upon you **Levi** and His glory shall be seen on you.

    And nations shall come to your light, and kings to the brightness of your rising.

    Isaiah 60:1-3

  3. Praying for Levi right now. Our God is not bound by the numbers on those screens. May He use Levi to display His glory!

    "The Lord your God is in your midst,
    a mighty one who will save;
    he will rejoice over you with gladness;
    he will quiet you by his love;
    he will exult over you with loud singing."

    Zeph 3:17

  4. loving levi and praying he gets stronger

  5. Ran across your blog on a friends FB status. Just wanted to let you know I am praying for you guys. I was in your shoes 20 years ago. My daughter was the 93rd baby on ECMO@ Children's. She is now mostly healthy. With God there is always hope and miracles. She has been our miracle for a long time. As much as I hated going through it all I'm glad we had Children's so close. We live in Tuscaloosa. Please know that my family is praying for yours during these trying days. You have precious boys! God will take care of all of you. Trust.
    John 16:33 "I have told you these things, so that in me you may have peace. In this world you WILL have trouble. But take heart! I have overcome the world."
    God bless.