Today has been a bad day. We were back up to around .570 on the flow. Levi's pre sat kept dropping. That number is usually pretty good. He is not using the oxygen they are giving him so we need his lungs to open up and start working. The little air he had on his X-ray was gone this morning. The blood in his lungs did stop and we were just getting old blood out instead of red so hopefully that will stay away so we can do more chest PT. I don't know why his lungs are so sensitive; maybe all of the blood thinner he is on. He is very swollen and not peeing as much so we are hoping he will get rid of some more of that fluid in the next few hours. He was doing much better and had more breath sounds and air a few days ago when he was more dry. The steroids do not seem to have helped; they have his blood pressure elevated and have him aggravated. Maybe when he gets those out of his system he will calm back down and make some progress. I hate that we lost everything we accomplished.
Levi looked so sweet today and so sad. He just looked like he didn't feel good. That breaks my heart, I just want him better so I can hold him and love on him all day. I want him to feel my love. I hope he doesn't feel so sad laying there all day, just wishing someone would pick him up and snuggle him. We started playing classical music for him about a week ago and it puts him to sleep. Sweet boy. Today I was playing him some of my favorite songs. One I think he liked was Kari Jobe, Healer. It is hard not to get frustrated by days like today but I am not giving up. I will keep praying for healing until he is healthy in my arms.