Thursday, September 15, 2011

Day 20

Today was a pretty uneventful day. Levi is about the same as he has been. We got to change his diaper today several times and it is good that he is having wet diapers (we need to get rid of the excess fluid). Levi was over 8 pounds today and so we have a good bit of fluid to lose. After we lose some of the fluid they plan to start him on steroids to try and help his lungs develop and start working. Dr. Anderson doesn't seem very hopeful, but it is worth a shot. I am believing that in a few days it is all going to turn around and his lungs will just start opening and filling with air and he will make lots of progress quickly and be able to make the switch from ECMO to the ventilator and then he can prepare for surgery. I was trying to just keep talking to Levi today and encourage him to open his lungs. I told him that we were not giving up on him and he couldn't either. I told him that we will be there beside him as he fights and that even though there are more challenges ahead, we would be there to love on him and help him pull through.

We also had a prayer vigil tonight in the chapel at the hospital. We are so so thankful for all of the people who showed up to support us and pray with us. We are so so thankful for all of the people who couldn't make it but prayed where they were and of course so so thankful for all of the people in our prayer group who continue to check on us and pray for us. Our sweet boy has so many people praying for him! I can't wait for the day that I can tell him just how special and loved he is; what a miracle he is and how important he is. I love that boy so very much! My heart is so full of love for him and Caleb, I feel like it could just explode. That is strange, but I guess a mother just can't describe her love for her babies!

We will continue to pray for Levi's lungs to do what they need to do and that is what we ask you all to pray for as well. Those lungs opening up and starting to work is the first step. After that we need him to tolerate us weaning him from the ECMO but we will focus on one thing at a time. We are praying life for Levi in faith and believing that God will heal our sweet boy.

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