Monday, September 26, 2011

Update From Today

So the circuit was changed about 6 PM and everything went well. They are talking about starting steroids tomorrow or the next day. I think they were leaning towards tomorrow, I just hope he doesn't gain too much fluid between now and then (we want to give him the best possible chance for them to work). His flow was up pretty high when we left tonight so we are hoping his sats will be good tomorrow and stay good so we can work on weaning. They were ok but his pre sat was dropping too low. The other numbers were decent. Sats were about 87 and 77 (we need these to get up close to 100) and SvO2 was at 70 (better if it is like 75-80).

Really hoping that changing the circuit doesn't cause Levi to gain too much fluid and lose the air he has in his lungs or lose his breath sounds. We need him to get LOTS more air in there and have good, clear breath sounds. I believe it can happen. Keep praying, everyone! Keep encouraging us! Somehow, every time I get down someone sends me a text or some scripture that encourages me. You guys don't stop. We really couldn't do this without each and every one of you and your prayers mean so much!

Levi - One Month Old


  1. 1Pet 2:24..........(Jesus) bore our sins in His own body on the tree, that we, having died to sins, might live for righteousness -- by whose stripes you were healed. I have great faith and positiveness that God is healing our precious Levi :) ((hugs)) and love always.

  2. I just heard about your story and want you to know that we WILL be praying for Levi...and I love that his name rearranged is "Live!" He might have some little rearranged organs but God can totally heal this and he will have an amazing testimony to share one day. He truly is a beautiful baby with such perfect coloring and it sounds like he has a family loving on him constantly. We vow to pray for you from Texas and look forward to hearing that he is breathing on his own very soon. I have faith your family will be at home together one day in amazing health because the God we serve is awesome!

  3. I just saw your little guy in a prayer request! I am so sorry he has been through so much but pray with all my might he can pull air into those little lungs! COME ON LEVI YOU CAN DO IT!!!

  4. Just stumbled across your blog and wanted to let you know that I'll be praying for Levi, and for you. Our daughter was on ECMO for 22 days and I know how scary those circuit changes are. I'll be praying that he can keep that fluid off, that his lungs will fill with air and that you can wean your pump settings. I'll also be praying that you experience God's peace and comfort during this extremely trying time. If there's anything we can do for you, please let us know.

    Mom to Clara, LCDH and ECMO survivor
    born 3/23/11

  5. I just read this and I have a friend who's daughter was born with CDH. She is now involved with the Parker Reese Foundation supporting CDH awareness. If you want more info on it:

    I will be praying Levi can get off of ECMO and have his hernia repaired.